I need your help!
There comes a time in a person’s life where they can no longer do something for themselves and must ask for help. I have arrived at one of those moments.
As some of you know, I suffer from Polycystic Kidney Disease (PKD) which is a hereditary disease that causes your kidneys to lose function over time. Your kidneys become covered with cysts and grow to an extra-large size. I have tried to live a lifestyle that would help keep the disease at as slow a rate of progression as possible, but my kidneys have reached the point of failing. I am at the point of 21% kidney function which means I need to find a new kidney for a transplant.
There are three options I face for treatment of my disease: dialysis, a kidney transplant from a deceased donor or a kidney transplant from a living donor. Dialysis will extend my life for a few years but that is only a temporary solution. I will also be on a list for a deceased donor but that can take years as the over 100,000 waiting transplant patients can attest to.
The use of a living donor is the best option for a kidney transplant. The living donor can be anyone family, friend or stranger and they do not have to be an exact match to donate. Unfortunately, I am limited on family donors since I am adopted and one of my children has already been confirmed as having the disease. A living donor kidney transplant offers less time on a waiting list, better short- and long-term survival and immediate kidney function for the recipient. I have found out some additional information about kidney donation:
I know this is a lot to ask of someone and I wouldn’t ask if it wasn’t absolutely necessary. I have a team at the KU Med Center in Kansas City working with me to make my transplant successful. If you would be interested in looking into donating a kidney please contact Jordan, Living Transplant Nurse, at 913-588-0266, and she will answer any questions you might have.